TLDR - all my symptoms
Ok..I’m going to attempt to go through all my symptoms in chronological order. I haven’t been officially diagnosed with anything and as one does we all turn to Dr. google to help figure things out when no one else has any answers. While coming across this thread I felt like a lot of my symptoms have been mentioned.
All started last spring around March/April. Started as left side armpit and left breast pain. (I’ll mention the pain at first felt similar to something that had happened a couple years ago. I was told it was hormones after a mammogram and ultrasound and a visit to a breast specialist) The pain continued to get worse often feeling like some shoved a tennis ball in in my armpit or breast. I started to also feel pressure in my back and at the end of May I went to urgent care where they performed a breast exam and did an EKG. Once again told it was hormonal. I did feel at the time it seemed to may be following my cycle: i started tracking when i felt pain and I’d have maybe a week a month where it would go away and come back. I started to get some pain in my arm, like a ring around my bicep. I made an appointment with my PCP as I continued to have pain. My appointment was end of June, they did blood work all came back normal and EKG. They sent me for a mammogram which came back clear. Also had a cervical spine and thoracic spine xray which came back fine. (These tests were in July). Also checked my B12. Little low so I’m on a B12 vitamin.
In July I started feeling lightheaded also with continued pain. I was sent for a stress test at the begging of August that came back normal. I also had a diagnostic mammogram w/ ultrasound and those came back clear.
At the beginning of August I noticed that I started having some right calf pain..it continued through August. I went to urgent care and they sent me to ER for ultrasound which came back clear. D-dimer clear. Told DR. about the pain i had been trying to figure out, he thought it was weird so did blood work and troponin test, all normal.
The day after i was in the ER i went to dinner with a co-worker and then woke up the following day with really bad neck and shoulder pain, felt like i slept funny. Couldn’t move my neck.
Then I started to feel like my whole body was buzzing, my hands started to ache. Then started to get headaches. I did a chest xray at beginning of September and was checked for autoimmune issues. The only issues found was a slightly elevated Sedimentation rate (27). As I also continued to have calf pain I had a leg xray..normal.
At this point I’m having neck, shoulder blade, armpit and breast pain. Often entire back pain…and then I started to have burning down both arms and into hands. It continued to get worse. I ended up in bed for a weekend with severe neck pain and an intense headache. Along with all the other pain. I ended up going to the ER when I couldn’t move without getting lightheaded and had a horrendous headache
ER performed EKG, blood work, Lyme, C-reactive protein, Covid/flu, parasites, and they did head and neck CT…everything normal.
End of Oct i had a full spine CT - normal (some normal degenerative stuff but nothing that should cause all my issues)
Also had an appt with neurologist (took forever to get appt. My PCP thought maybe i was having nerve issues) Got MRI of brain, cervical and thoracic spine, i had a couple mild disc bulges but otherwise normal according my neurologist the bulges aren’t pressing on any nerves so are unlikely to cause me pain. He ordered an EMG but i couldn’t get in til Feb so TBD.
In my thoracic spine mri it was noticed that i had some calcification in my arteries so i got an appt with a cardiologist. He seems to think im fine but i willing to additional testing since there is heart issue history in my family. Haven’t had those tests yet.
I also had an appt with an orthopedist (had increasing left should and shoulder blade pain) —i swear this is where i get to why im here. The Ortho had me manipulate my shoulder and pull my shoulder blades back, he said everything looked ok but would have me do an MRI to be safe (still waiting on appt) and referred me to a physiatrist (still waiting on appt) The very next day my sternum hurt, both shoulders hurt like i pulled a muscle, lots of my pain moved to the right shoulder. My breasts are super tender. my left shoulder blade pain was virtually gone..comes on a little but at times but is mostly gone.
I still have all the pain but it’s mostly sternum and gets worse if i stretch it out.
Has this been costochonditis this whole time?
If you’ve made it to the end I truly appreciate it. I’m sure I’ve forgotten things….
Edit: already remembered something, for a time I was having random muscle twitches, noting in a specific area they happened all over my body